Research changes what’s possible for people with PWS.
Better treatments.
Stronger care.
More independence.
Thanks to a generous donor, every gift is matched this May.
What is Prader-Willi Syndrome?
Prader-Willi syndrome is a rare genetic condition that affects hunger, behavior, and development.
One of its most challenging features is hyperphagia—an intense, lifelong drive to eat that can impact safety, independence, and daily life.
Research is working to change that.
The Foundation for Prader-Willi Research
FPWR was founded by parents who refused to wait for progress.
Since 2003, we’ve brought families, researchers, and clinicians together with one shared goal: eliminating the challenges of Prader-Willi syndrome through research.
Driven by urgency and grounded in science, FPWR prioritizes genetic therapies, clinical trials, and studies that improve care and quality of life for people living with PWS.
Everything we do is guided by the families we serve and focused on creating meaningful progress for people with PWS.
Want to make an even greater impact?
Create and share your own fundraising page! By sharing your passion for the cause with your networks, you'll accelerate our mission to eliminate the challenges of PWS.
Every dollar raised brings us closer to a FULL and independent life for our loved ones with PWS.
