Prader-Willi syndrome is a rare genetic disease, affecting approximately 1 in 15,000 births worldwide.
You have the power to make a difference. Celebrate Rare by supporting research that advances treatments and empowers individuals with PWS to live full and independent lives.
What is Rare Disease Day?
Rare Disease Day is observed annually on February 28, or February 29 in leap years, the rarest day on the calendar. It’s a day dedicated to raising awareness for the more than 7,000 rare diseases that affect over 300 million people worldwide.
Rare is...
The Foundation for Prader-Willi Research
FPWR was founded by parents who refused to wait for progress. Since 2003, we’ve brought families, researchers, and clinicians together with one shared goal: to advance meaningful treatments for Prader-Willi syndrome.
Driven by urgency and grounded in science, FPWR funds research, builds global collaboration, and helps move promising therapies forward. Everything we do is guided by families and focused on improving quality of life, today and for the future.
Share Your Rare
Want to make an even greater impact? Create your own fundraising page. By sharing your connection to Prader-Willi syndrome with your community, you’ll help accelerate research and bring us closer to new treatments for PWS. Every dollar raised moves the science forward.
