Our loved ones with PWS want to live life FULL! You have the power to make a difference. Support research, and together, we will empower our loved ones to live FULL and independent lives.
What is Prader-Willi Syndrome?
PWS is a rare genetic condition occurring in 1 : 15,000 live births. PWS is a spectrum disorder with some individuals having a milder disability than others. Typically, however, people with PWS have, among other challenges, delayed milestone development, low muscle tone, mild to moderate intellectual disability, and a challenging behavior profile.
The hallmark symptom of PWS is hyperphagia, an intense, persistent sensation of hunger accompanied by food occupations, an extreme drive to eat, food-related behaviors, and a lack of normal satiety. Hyperphagia commonly begins between 3 and 8 years of age. Many families consider locking their refrigerators and cabinets at this time to keep their loved ones safe.
Prader-Willi Syndrome is...
The Foundation for Prader-Willi Research
We’re not just waiting and hoping for new treatments, and a cure, for Prader-Willi and Schaaf-Yang syndromes. We’re aggressively doing something about it. The Foundation for Prader-Willi Research was established with one aim in mind: to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.
Want to make an even greater impact? Create your own fundraising page! By sharing your passion for our cause with your networks, you'll accelerate our mission to eliminate the challenges of PWS. Every dollar raised brings us closer to a FULL and independent life for our loved ones with PWS.
